From Brain Tumor to Brain‑Tech:
From Illness to Transformation:
A Journey of Hope and Healing
A Sudden Collapse
On November 24 I felt my legs give way and crumpled to the floor of our office. I woke up hours later in a hospital bed, speechless and confused. Doctors found an aggressive mass in the very centre of my speech cortex. The diagnosis that followed would change my life: Stage 4 terminal glioblastoma — a brain tumour usually seen in people twice my age.
Two second opinions, and one clinical‑trial offer later, the verdict was the same: No known cure. Median survival 18 months. I refused to accept that this was the end of the story.

Post OP

Post OP
Reverse Engineering Hope
Reverse‑Engineering Hope spent Christmas writing— 125 pages of notes, 19 promising but unproven therapies, and zero actionable targets in my own genetic data. When medicine could not give me another lever to pull, I turned inward. A video of another survivor, James, lit the first spark of hope. If he could outlive the statistics, maybe I could too. That curiosity led me to the science of brain‑ and heart‑coherence — more on that later.
I became my own case study: daily meditation, detailed self‑reflection journals, and the occasional standard MRI scan to track what truly matters—results. I meditated one to two hours every day, sometimes in the radiotherapy waiting room. Within weeks my sleep cut itself in half but I woke up more restored than ever.
What the medical world had to offer
OPTIONS
Why It’s Standard
Why I Chose Differently
Surgery & Radiation
Removes the bulk of the tumour and zaps margins. Therapy from the 1940s ..
I did both—they bought me time but aren’t curative.
Temozolomide & Chemotherapy
First‑line drug for glioblastoma; can add a few months.
My MGMT gene profile predicted low benefit vs. side‑effects. With the serve side effects stopped after round 2.
Optune - TTF
Wearable cap that sends low‑intensity electric fields 24/7; trials show ~3–5 months median survival gain.
€20 k/month, scalp burns, must wear >18 h/day; misaligned with my quality‑of‑life goals, so I declined.
Experimental Trials
Next‑gen cell or gene therapies in early testing.
One option quoted €2 million out‑of‑pocket with no clear odds. My Profiles didn't fit to any.
The Hidden Downsides of Optune
Wearing the cap means shaving your head indefinitely, lugging a battery pack everywhere, swapping adhesive arrays twice a day to avoid scalp burns, and trying to sleep while tethered to cables. For many young patients it’s a 24‑hour billboard announcing “I’m sick,” which can amplify anxiety and social isolation. The pivotal trials quote a median survival bump of only 3–5 months and enrol mostly older patients; robust data for people in their 20s or 30s simply don’t exist. Conversations with several long‑term survivors who skipped Optune left me asking whether the device extends life or mainly extends treatment revenue.
For me the choice was clear—I declined. A device that offers no cure and keeps my mind tethered to the identity of being sick never fit my path.

NGS
Because I was young, the doctors ran Next-Generation Sequencing (NGS) on my tumour—a super-detailed DNA/RNA scan that looks for mutations a drug could attack. We all hoped the report would say, “Here’s the switch we can flip.”The result? Zero targets.
No broken genes, no mutation, nothing a pill or antibody could latch onto. 16 pages of data boiled down to one line: “No actionable alterations detected. ”That hit hard. If the cancer wasn’t hiding in my genetics, then what was driving it? For me the answer pointed inward: long-term stress, unprocessed trauma, and the way my mind had been wired since childhood. That realisation sent me deeper into meditation and mindset work—because if no drug could switch the tumour off, maybe I could.
Real World Examples
Hearing from long‑term survivors like James, Megan (“The Brainy Blonde”), and Susan Hilburger (14 years clear) convinced me that healing is possible without devices such as Optune. Their experiences pushed me deeper into the science of brain–heart coherence, reinforcing the idea that disciplined inner work can shift biology down to the mitochondrial level. And that change and transformation is creating healing.
Healing What Was Hidden
The tumour pressed on my speech centre—fitting, because I’d spent years holding words back. Shock one: my father left. Shock two: my step‑dad died when I was 18. Those blows hardened into a constant, heavy depression. A next‑generation sequencing test showed no genetic trigger, so I asked myself: Did years of silent stress give the tumour space to grow?
Meditation became my workshop. Bit by bit the fog cleared, my pounding heartbeat settled, and I felt what a calm mind really is. Realizing those inner traumas was a major turning point for me — they had been hidden for so long that I didn’t even know they existed.


What a Depressed Brain Looks Like
MRI and quantitative EEG studies show that depression traps the brain in a tight frontal loop: the medial prefrontal cortex and anterior cingulate (our rumination hubs) are stuck on over‑drive while large swaths of the cortex stay under‑connected. Long‑term meditators display the opposite—balanced, whole‑brain coherence, stronger links between the so‑called default‑mode and task‑positive networks, and a calmer autonomic profile (higher vagal tone, steadier heart‑rate variability). Those before‑and‑after brain maps made the mind‑body link impossible to ignore and kept me committed to the practice.

- Mind – One hour of focused breathwork/meditation every dawn, plus micro‑“check‑ins” before every meeting.
- Body – Food became a ritual rather than a refuel: mostly plants, zero ultra‑processed, eaten slowly and gratefully.
- Routine – I stopped optimising every minute and relearned how to take time: walking new streets, brewing loose‑leaf tea, washing dishes by hand just to feel the water.
The Peptide Vaccine
After meeting more than twenty specialists, I finally connected with a neuro‑oncologist who offered a novel path: a personalised peptide vaccine that trains my immune system to hunt down any residual tumour cells. The therapy is compassionate‑use and still unproven, but early case reports hint at longer disease‑free intervals. I receive an injection every few weeks and track progress through standard blood panels and MRI.
But From my own experience, I believe the shot is only half the battle; if I don’t resolve the depression and stress patterns that I see as the tumour’s root, I risk inviting it back. I kept only the tumour‑removal surgery and a brief course of radiation; everything else—meditation, nutrition, and this immune‑boosting vaccine—now forms my self‑directed care plan.
Where Tech Meets Consciousness
Before cancer I designed augmented-reality worlds for global brands—campaigns where 3-D objects cars or virtual products hovered in your living-room. During treatment a different idea clicked: What if the scene reacted to my inner state instead of my fingertips? I’m now prototyping a platform that pairs non-invasive biosensors — EEG headbands, optical heart-rate-variability straps — with Unity-based XR environments. When your heart rhythm slips into coherence the virtual world brightens, geometry aligns, and music resolves into rich overtones. When stress spikes, colours desaturate, clouds roll in, and gentle breath-work cues appear.Think of it as bio-feedback meets interactive art—a way to see gratitude, calm, or focus in real time and train those states the same way we train muscles.
No one should have to stare at an 18‑month stopwatch without a map. My mission is to keep learning every day and turn everything I discover—medical, technological, and deeply human—into open, shareable systems of hope and empowerment:
- Speaking & Workshops – Translating cutting‑edge mind‑body research into practical daily protocols.
- Open‑Source Data – Publishing my own genomic and biometric data on GitHub so others can build on it.
- XR Biofeedback Projects – Creating mixed‑reality experiences that teach coherence through play. Make it in fun to understand your neuroscience
Today
As you read this, I am tumour‑free on every scan. I’m still inside the 18‑month prognosis window doctors gave me, yet the shifts in how I think, feel, and live make me certain I’ve already stepped off that statistical curve. If any part of this journey resonates—whether you’re a patient, a researcher, or a creator exploring the mind‑body frontier—let’s connect.